National Sarcoidosis Organization is Canadian based and has put forth the efforts to bring awareness and research about this disease to be more local in Canada. We have few to no resources here and it is our mission to change that through offering support, awareness, resources and provide funds to medical research in our Canadian Medical research departments. We hope to work with others in Canada as to helping with awareness and bring together fundraising efforts.
I myself the founder of this organization have been a patient of Sarcoidosis since 2005 and have run into many loop holes here where better research and information would have helped with diagnosis and treatments.
It has been a goal of mine to get (April) Sarcoidosis Awareness Month Proclaimed in Canada as well as make more resources and information available to the public. We have few, to no doctors that specialize in this disease and the research is limited here in Canada so my hopes are to fund for more research through medical universities and schools as well as support for patients and people affected by this disease.
I plan to hold six fundraising events annually as well as through direct donations I am hopeful we can start to get more support and information here in Canada.
We are always looking for further members and supporters to help with these efforts, please contact us if you wish to hold an event or volunteer for upcoming events.
CONTACT US FOR AN EVENT PLANNER HANDBOOK
-Forms to plan an event
-Expense tracking and Revenue tracking sheets
-Need to know information
-Orgnization Guidelines and Rules
LET US FIND A CURE!
Our Funds will go to Medical Universities across Canada in support of their on going research and clinical trials underway. As the research is always changing along with which university is actively researching will be a deciding factor as to where the funds raised will go each quarter year when we deligate them accordingly. We will deligate 85% of the funds raised to Research and the remaining will go towards publications, awareness, support, and up keep to the organizations functioning.
We are incorporated and registered through Canada Revenue Agency which allows us to issue tax receipts. Please contact us for more information.
Questions, comments or concerns contact firstname.lastname@example.org