The National Sarcoidosis Organization is a Canadian non-profit charity. Our mission is to provide support to those affected by this disease, increase awareness of Sarcoidosis within Canada, and raise funds through various fundraising events for Sarcoidosis research throughout Canada.
Melany Sealy, Founder and President, is a Sarcoidosis patient since 2005. She discovered that a lack of information support for Canadian Sarcoidosis patients. With this in mind, she created the NSO in 2012. One of her personal goals is to have April proclaimed as Sarcoidosis Awareness Month across Canada. Together with her medical specialists and board recruits Cheryl Gould and Dawn Smith, also Sarcoidosis patients, the goals began to come together by the end of 2012.
In late 2012, we were approached by the Saban / Weisgerber families who had recently lost Chad Weisgerber to complication of nero-sarcoidosis. our board elected new members including the Weisgerber and Saban families. We were able to
We are always looking for further members and supporters to help with these efforts, please contact us if you wish to hold an event or volunteer for upcoming events.
CONTACT US FOR AN EVENT PLANNER HANDBOOK
-Forms to plan an event
-Expense tracking and Revenue tracking sheets
-Need to know information
-Orgnization Guidelines and Rules
HELP US FIND A CURE!
Our Funds will go to Medical Universities across Canada in support of their on-going research and clinical trials underway. As the research is always changing along with which university is actively researching will be a deciding factor as to where the funds raised will go each quarter year when we deligate them accordingly. We will deligate 85% of the funds raised to Research and the remaining will go towards publications, awareness, support, and up keep to the organizations functioning.
We are incorporated and registered through Canada Revenue Agency which allows us to issue tax receipts. Please contact us for more information.
Questions, comments or concerns contact firstname.lastname@example.org