|Posted by Melany Sealy on October 7, 2013 at 11:55 PM||comments (0)|
Sirocco Golf Course was host to the 3rd Annual Sarcoidosis Golf Tournament this year where over $10,000.00 was raised. It was a beautiful day for great golf at a wonderful course, followed by banquet, awards and silent action.
The event was in honour of Chad Weisgerber, who passed away in 2012 from complications of neuro-sarcoidosis. Organized by Chad's sister, Tanya Saban, along with her family and friends, the day was a complete success. Speakers at the dinner shared accounts of...Read Full Post »
|Posted by Melany Sealy on October 7, 2013 at 11:50 PM||comments (0)|
2nd Annual Sarcoidosis Walk A Thon in Red Deer, Alberta was a success. It turned out to be a beautiful day! Each step counts in raising awareness and funds for research in Canada. Thank you to all who donated and to all the participants who came to the event. Also a huge thank you to all who volunteered to make this event possible. Looking forward to next year's event.
|Posted by Melany Sealy on April 25, 2013 at 12:05 AM||comments (0)|
Fundraiser from the Heart
On Sunday, April 21st, 12 year old Emma Saban held an Arts and Crafts sale, raising $223.00 which she has donated to the NSO. For the last 6 months, Emma has been diligently working, preparing various types of crafts and works of art. Emma recently lost her Uncle Chad through complications of neuro-sarcoidosis. She is very proud to have been able to raise this money and make a donation in her uncle’s name. Her Uncle Chad would be very proud of her. The N...Read Full Post »
|Posted by Melany Sealy on April 23, 2013 at 11:20 AM||comments (0)|
CBC Radio interview about a personal journey with sarcoidosis.
|Posted by Melany Sealy on April 9, 2013 at 9:55 AM||comments (0)|
Left To Right Back - Cheryl Gould, Dawn Smith, Tanya Saban, Dr. Beach, Front Left To Right - Tania Weisgerber and daughters Claire and Annika, Dr. Cherry and Melany Sealy.
On Monday, April 08, 2013, the National Sarcoidosis Organization presented a cheque for $13,000.00 to ...Read Full Post »
|Posted by Melany Sealy on March 29, 2013 at 6:20 PM||comments (0)|
In Sudbury Ontario a young woman who has been diagnosed with pulmonary sarcoidosis was interviewed by Cindy O'Neil who is a singer/songwritter and publisher. They put together a podcast https://itunes.apple.com/ca/podcast/vocal-vibes-podcast-cindy/id579006999 as well as a YouTube video http://www.youtube.com/embed/4EfHxpbwjiY .
Please take a look...Read Full Post »
|Posted by Melany Sealy on February 12, 2013 at 6:05 PM||comments (0)|
With universal sarcoidosis awareness month fast aproaching in April 2013 we are starting to receive proclamations from our provinces in Canada. Each province was approached by a letter back in December asking for their support by proclaiming April 2013 as Sarcoidosis Awareness Month and on April 13, 2013 people are asked to wear purple and white to show their support. We will post all proclamations that we receive.
It is with great pleasure to announce that...Read Full Post »
|Posted by Melany Sealy on December 18, 2012 at 11:30 AM||comments (2)|
In 2013 a new Canadian campaign called S.T.A.R. will be in effect across Canada. S.T.A.R. stands for Sarcoidosis, Awareness, Treatment and Research. This campaign will officially launch during April which is the international month to spread awareness about sarcoidosis. N.S.O. has been hard at work planning events and they will have some great products available for you to order in support of S.T.A.R. If you would like to hold a S.T.A.R. event please contact us atRead Full Post »
|Posted by Melany Sealy on December 2, 2012 at 11:45 AM||comments (0)|
This article states that it is safe to get the influenza vaccine if you have pulmonary sarcoidosis. It has been suggested not to recieve the live vaccine which is given by nasal spray as most patients with sarcoidosis have already weakend immune systems. Please contact you doctor or health care provider for more information.Read Full Post »
|Posted by Melany Sealy on November 26, 2012 at 9:30 AM||comments (0)|
N.S.O. Has A New Board Of Directors
On November 24, 2012 the National Sarcoidosis Organization held its annual meeting which allowed others to come and see what the organization is about. The organization had three board members step down to take chair positions so an election was held. We heard from others who were nominated or volunteered to help fill the positions and the new board of directors was then formed by voting. Our new board is as stated:
Mel...Read Full Post »