|Posted by nationalsarcoidosis on February 25, 2015 at 12:35 AM|
February 23, 2015
The National Sarcoidosis Organization is not in any way affiliated with the S.T.A.R. 5th Annual Sarcoidosis Golf Charity Classic (EVENT), a private, third-party event, scheduled for September 11, 2015 at the Carstairs Community Golf Club, Carstairs, Alberta and therefore, not liable for any costs incurred by said EVENT. The National Sarcoidosis Organization is not affiliated with previous organization of said EVENT(s), though fun...Read Full Post »
|Posted by nationalsarcoidosis on February 1, 2015 at 2:05 AM||comments (0)|
April will soon be upon us and this year, if you see a landmark near you lit up in purple and white on April 13, 2015, it is for Sarcoidosis awareness!
Requests have been sent to CN Tower (Toronto), Niagara Falls (Ontario), High Level Bridge (Edmonton), Calgary Tower and BC Place (Vancouver) to have their light display go purple and white on our special day.
If your city or p...Read Full Post »
|Posted by nationalsarcoidosis on January 31, 2015 at 12:35 PM||comments (0)|
Well, 2014 passed us in a whirlwind. Our board now stands with four members, Melany Sealy, President; Cheryl Gould, Vice-President; Dawn Smith - Secretary/Treasurer and Cher Weisgerber, Chair.
The April Awareness campaign resulted in the board distributing "April is Sarcoidosis" Awareness stand-ups to medical offices in Canada. Tanya Saban again organized and hosted a successful golf tournament at the Carstairs G...Read Full Post »
|Posted by nationalsarcoidosis on October 7, 2013 at 11:55 PM||comments (0)|
Sirocco Golf Course was host to the 3rd Annual Sarcoidosis Golf Tournament this year where over $10,000.00 was raised. It was a beautiful day for great golf at a wonderful course, followed by banquet, awards and silent action.
The event was in honour of Chad Weisgerber, who passed away in 2012 from complications of neuro-sarcoidosis. Organized by Chad's sister, Tanya Saban, along with her family and friends, the day was a complete success. Speakers at the dinner shared accounts of...Read Full Post »
|Posted by nationalsarcoidosis on October 7, 2013 at 11:50 PM||comments (0)|
2nd Annual Sarcoidosis Walk A Thon in Red Deer, Alberta was a success. It turned out to be a beautiful day! Each step counts in raising awareness and funds for research in Canada. Thank you to all who donated and to all the participants who came to the event. Also a huge thank you to all who volunteered to make this event possible. Looking forward to next year's event.
|Posted by nationalsarcoidosis on April 25, 2013 at 12:05 AM||comments (0)|
Fundraiser from the Heart
On Sunday, April 21st, 12 year old Emma Saban held an Arts and Crafts sale, raising $223.00 which she has donated to the NSO. For the last 6 months, Emma has been diligently working, preparing various types of crafts and works of art. Emma recently lost her Uncle Chad through complications of neuro-sarcoidosis. She is very proud to have been able to raise this money and make a donation in her uncle’s name. Her Uncle Chad would be very proud of her. The N...Read Full Post »
|Posted by nationalsarcoidosis on April 23, 2013 at 11:20 AM||comments (0)|
CBC Radio interview about a personal journey with sarcoidosis.
|Posted by nationalsarcoidosis on April 9, 2013 at 9:55 AM||comments (0)|
Left To Right Back - Cheryl Gould, Dawn Smith, Tanya Saban, Dr. Beach, Front Left To Right - Tania Weisgerber and daughters Claire and Annika, Dr. Cherry and Melany Sealy.
On Monday, April 08, 2013, the National Sarcoidosis Organization presented a cheque for $13,000.00 to ...Read Full Post »
|Posted by nationalsarcoidosis on March 29, 2013 at 6:20 PM||comments (0)|
In Sudbury Ontario a young woman who has been diagnosed with pulmonary sarcoidosis was interviewed by Cindy O'Neil who is a singer/songwritter and publisher. They put together a podcast https://itunes.apple.com/ca/podcast/vocal-vibes-podcast-cindy/id579006999 as well as a YouTube video http://www.youtube.com/embed/4EfHxpbwjiY .
Please take a look...Read Full Post »
|Posted by nationalsarcoidosis on February 12, 2013 at 6:05 PM||comments (0)|
With universal sarcoidosis awareness month fast aproaching in April 2013 we are starting to receive proclamations from our provinces in Canada. Each province was approached by a letter back in December asking for their support by proclaiming April 2013 as Sarcoidosis Awareness Month and on April 13, 2013 people are asked to wear purple and white to show their support. We will post all proclamations that we receive.
It is with great pleasure to announce that...Read Full Post »