|Posted by nationalsarcoidosis on April 15, 2015 at 2:05 AM||comments (0)|
Thank you to Toronto, Calgary and Edmonton for supporting our Awareness Month! The National Sarcoidosis Organization is pleased to see the CN Tower, Calgary Tower and High Level Bridge draped in purple and white over the last few days. This is the first time the NSO has promoted awareness in this manner and we are already looking toward 2016's awareness month and what opportunities are available to light up more of Canada in purple and white! Did you happen to see any of the landmarks lit up?...Read Full Post »
|Posted by Dawn Smith on March 31, 2015 at 11:00 PM||comments (1)|
When the National Sarcoidosis Organization was formed in 2012, one of the main goals of the founder, Melany Sealy, was to create awareness of this disease. At the time, other than the t.v. show "House", people really didn't know much about the sarcoidosis. Melany began a campaign to have Canadian cities and provinces declare April as Sarcoidosis Awareness Month. We are pleased to be celebrating another Awareness Month in 2015.
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|Posted by nationalsarcoidosis on March 26, 2015 at 7:10 PM||comments (1)|
In this video from CBC Ottawa, Lee-Ann Bruce, a sarcoidosis patient, is interviewed regarding the hardships of not being able to afford the drugs required for a transplant. The National Sarcoidosis Organization has been approached to add to the interview series. If is for people like Lee-Ann that we are here, to increase awareness and research. With awareness, governments will realize the need to assist those who cannot pay for their own medications. Watch here for what Lee-Ann has to say and...Read Full Post »
|Posted by nationalsarcoidosis on March 12, 2015 at 12:45 AM||comments (0)|
The National Sarcoidosis Organization is proud to announce the Swing "Fore" Sarcoidosis Golf Tournament on August 28, 2015 at Coyote Creek Golf and RV Resort in Sundre, AB! Please view the attached information for all the details!
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|Posted by nationalsarcoidosis on February 25, 2015 at 12:35 AM|
February 23, 2015
The National Sarcoidosis Organization is not in any way affiliated with the S.T.A.R. 5th Annual Sarcoidosis Golf Charity Classic (EVENT), a private, third-party event, scheduled for September 11, 2015 at the Carstairs Community Golf Club, Carstairs, Alberta and therefore, not liable for any costs incurred by said EVENT. The National Sarcoidosis Organization is not affiliated with previous organization of said EVENT(s), though fun...Read Full Post »
|Posted by nationalsarcoidosis on February 1, 2015 at 2:05 AM||comments (2)|
April will soon be upon us and this year, if you see a landmark near you lit up in purple and white on April 13, 2015, it is for Sarcoidosis awareness!
Requests have been sent to CN Tower (Toronto), Niagara Falls (Ontario), High Level Bridge (Edmonton), Calgary Tower and BC Place (Vancouver) to have their light display go purple and white on our special day.
If your city or p...Read Full Post »
|Posted by nationalsarcoidosis on January 31, 2015 at 12:35 PM||comments (0)|
Well, 2014 passed us in a whirlwind. Our board now stands with four members, Melany Sealy, President; Cheryl Gould, Vice-President; Dawn Smith - Secretary/Treasurer and Cher Weisgerber, Chair.
The April Awareness campaign resulted in the board distributing "April is Sarcoidosis" Awareness stand-ups to medical offices in Canada. Tanya Saban again organized and hosted a successful golf tournament at the Carstairs G...Read Full Post »
|Posted by nationalsarcoidosis on October 7, 2013 at 11:55 PM||comments (0)|
Sirocco Golf Course was host to the 3rd Annual Sarcoidosis Golf Tournament this year where over $10,000.00 was raised. It was a beautiful day for great golf at a wonderful course, followed by banquet, awards and silent action.
The event was in honour of Chad Weisgerber, who passed away in 2012 from complications of neuro-sarcoidosis. Organized by Chad's sister, Tanya Saban, along with her family and friends, the day was a complete success. Speakers at the dinner shared accounts of...Read Full Post »
|Posted by nationalsarcoidosis on October 7, 2013 at 11:50 PM||comments (0)|
2nd Annual Sarcoidosis Walk A Thon in Red Deer, Alberta was a success. It turned out to be a beautiful day! Each step counts in raising awareness and funds for research in Canada. Thank you to all who donated and to all the participants who came to the event. Also a huge thank you to all who volunteered to make this event possible. Looking forward to next year's event.
|Posted by nationalsarcoidosis on April 25, 2013 at 12:05 AM||comments (0)|
Fundraiser from the Heart
On Sunday, April 21st, 12 year old Emma Saban held an Arts and Crafts sale, raising $223.00 which she has donated to the NSO. For the last 6 months, Emma has been diligently working, preparing various types of crafts and works of art. Emma recently lost her Uncle Chad through complications of neuro-sarcoidosis. She is very proud to have been able to raise this money and make a donation in her uncle’s name. Her Uncle Chad would be very proud of her. The N...Read Full Post »