National Sarcoidosis Organization

Canadian Sarcoidosis Awareness and Research Organizaion


Joined Feb 13 2012
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53 years old
port hope ,ontario
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National Sarcoidosis Organization

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i was diagnosed in aug 2011 with sarcoidosis..{lungs}..i have two daugther,s both married with children ..i am so worry about my children..dont want them to feel the way i do ...

p.s if anyone would like to chat to me it would be great 

all the best 

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Reply Mary
10:45 AM on April 17, 2012 
Hi Wanda,
Thanks for the welcome!
I see you're from Port Hope, do you have any support in your area? If you don't mind me asking, where do you go for your medical support?
Reply Michelle
10:59 PM on March 26, 2012 
I hope that eventually sarcoidosis will be recognized for what it is-DEBILITATING and very serious. When I was first diagnosed about 15 years ago I was told that I would never get sick with it and was never told to get regular check ups. When I did get sick with it 7 years later I was told that what I have is just a nuisance. Well I am here to say it is much more than that. Doctors need to take it seriously. My whole life has changed because of it. This is a serious disease for some of us.
Reply Lise Ladouceur
2:48 PM on March 7, 2012 
Hi Wanda, I live in Cornwall , Ontario, so not so far from you if you take the 401,, I see the exit for Port Hope but have never been there.
Im sorry you are sick with Sarcoidosis, I do not wish this disease on anyone thats for sure; yet it can always be worse! I would love to correspond with you anytime my email is
talk to you soon (Im not sure if these posts are public?)

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