National Sarcoidosis Organization

Canadian Sarcoidosis Awareness and Research Organizaion

Buffie Hanes


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Joined May 11 2012
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FEMALE
40 years old
Grande Prairie
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National Sarcoidosis Organization

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About Me
I have been sick for a year. The pain got worst but mostly to my bottom of me. Were they found cancer. Then the waiting game started. OBG are the hardest doctors to get appointment with. It took 8 months.Then other things went worng with me. The doctors had no idea what was going on with me until I drop my family doctor and got a wonderful Doctor name Dr. Duta. He done a biopsy to my left n...eck and found not onw but three turmors. I then was diagnosed with Sarcoidosis in my right lung. After a year of struggling my doctor tells me I am one of the 10% or so that has 'chronic' sarcoidosis, causing extreme fatigue for which there is no cure. I can sleep 12-14 hrs a day and spend the rest of the day on the couch. I have to force myself to do things that mentally I WANT to do, but my body says no. Talking, even in short sentences, causes a set back. This is very depressing as being busying and talking has always been a very important part of my life - mentally and physically

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